EACF news

FOR PRESS: INSURACE COVERAGE CHANGES

FOR PRESS: INSURACE COVERAGE CHANGES

Epilepsy Association, Fla. Legislators & Other Health Care Groups to Announce Legislation to Protect Floridians from Dangerous Insurance Coverage Changes Press Event Announcing New Bill to Take Place Wednesday, January 20 at 12:30 in Florida Capitol Building   TALLAHASSEE, FLORIDA – January 14, 2015 – The Epilepsy Association of Central Florida and other members of the Florida Patient Stability Coalition invite members of the media to attend a special press event Wednesday, January 20, at the Florida Capitol Building. During the event, state legislators and health care advocates will unveil new legislation to protect the health of Floridians living with chronic, complex or rare medical conditions from mid-year health insurance changes that could put them at risk. The event will begin at 12:30 p.m. in the Florida State Capitol, Room 333 (House of Representative Press Room) and will feature the following speakers: Rep. Debbie Mayfield (R-Vero Beach) Sen. Alan Hays (R- Umatilla) Charles Carmen – Executive Director, Epilepsy Association of Central Florida Dr. Jason Goldman – Governor-Elect, American College of Physicians, Florida Chapter   WHO:       Epilepsy Association of Central Florida WHAT:     Press Conference to Announce Patient Protection Bill WHEN:    January 20th at 12:30 p.m. WHERE:  Florida State Capitol, Room 333 (400 S Monroe St, Tallahassee, Fla.)   About the Florida Patient Stability Coalition The Florida Patient Stability Coalition is a group of patient and provider groups dedicated to enacting legislation to help Floridians with chronic, complex or rare conditions continue to access the medical treatments that keep them healthy. Members of the coalition include The AIDS Institute, AIDS Alliance for Children, Youth & Families, The Arc of Florida, Epilepsy Association of Central Florida, Epilepsy Foundation of Florida, Florida Academy of Family Physicians, Florida Chapter of the American Academy of Pediatrics, Florida Chapter American College of Cardiology, Florida Chapter, American College of Physicians, Florida Gastroenterological Society, Florida Legal Services, Florida Osteopathic Medical Association, Florida Society of Dermatology and Dermatologic Surgery, Florida Society of Rheumatology, H.E.A.L.S. of the South, Lupus Foundation of Florida, NAMI Florida, Suncoast Epilepsy Association, and U.S. Pain Foundation. DOCUMENT DOWNLOAD: SB 1142/HB 915 Banning Non-Medical Switching Health Insurance Mandate...

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A BIG THANKS TO THE 2015 “AutoClassic” Sponsors

A BIG THANKS TO THE 2015 “AutoClassic” Sponsors

39th Annual AutoClassic Golf Tournament Presented by the Central Florida Auto Dealers Association  Benefiting the  Epilepsy Association of Central Florida Sponsors  Wayne Densch Charitable Trust Orlando Sentinel Communications 9 Family Connection and Mega TV  Zurich  JM&A Group – Valley National Bank Dealertrack Technologies —   Orlando Solar Bears  US Equity Advantage     —     PNC Bank Dealer Finance Rosenfield and Company PLCC   —   BB&T Insurance Services                 Stanley Steemer                                                        Florida Hospital for Children                Tech Hero                                                              DeLuca Toyota                Manheim Auctions Central Florida Market             Enterprise Holdings                Dealer Risk Services                                                          Fun Spot America                Motor Trend Auto Shows, Inc.                                  First Orange Tag Agency                Kilgore, Pearlman, Stamp, Ornstein & Squires, P.A.     Joe Miller  Charles Wohlust, PLC The New Orlando Auto Auction Borcheck & Gase, LLC Bank of America Merrill Lynch ROAR! Internet Marketing Adstrategies KeyCom Technologies WFTV-Channel 9 WRDQ-Channel 27 GES Global Experience Specialists Castle Products, Inc. Netsertive SunTrust Commercial Dealer Services Kisselback Ford AmeriSource Employee Benefits Crossley Shear Wealth Management Automotiv.com AutoTrader.com Avancent FirstCard Merchant Services Parks Auto Group TD Auto Finance Wawa Southeast Steel Showroom Pepsico Wayne Densch Distributors Bailey’s Coffee KeyCom Technologies GES Global Experience Specialists Action Radio & Cell SunTrust Bank Orlando Health Wawa McGruder Eye...

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2015 Brevard County Epilepsy Walk

2015 Brevard Epilepsy Walk! The Walk was a huge success. Here are some pictures and a short video from the event!   GALLERY Credit: The latter 154 photos were provided by Rick Koury Photo Artistry!   SPONSORS: Gold Sponsor Florida Hospital for Children Health First Neurosciences Supernus Pharmaceuticals Sunovion Pharmaceuticals  Wayne Densch Charities Silver Sponsors Dr. Joseph Cimino, Pediatric Neurology, P. A. Cyberonics, Inc. Lundbeck, Inc. Nanny & Papa Dave UCB Pharma, Inc. Bronze Sponsors CrossleyShear Wealth Management Neuroskeletal Imaging Orlando Epilepsy Center Upsher-Smith Laboratories, Inc. Widerman Malek, PL   BECOME A SPONSOR BY   Contacting...

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Epilepsy Awareness: About the Purple “e” Ribbon

Epilepsy Awareness: About the Purple “e” Ribbon

Epilepsy Awareness: Charity Designs Bold Purple “e” Ribbon to Stand Out From the Crowd 1 in 4 people will have a seizure during their lifetime, and 1 in 26 people will develop epilepsy. Today, 3.5 million people in the United States have epilepsy, making it the 4th most common neurological condition. Yet, despite its high incidence in the U.S., epilepsy receives a small percentage of research funding, and little attention, compared to other medical disorders. One charity, the Epilepsy Association of Central Florida, is intent on bringing epilepsy out of the darkness by building widespread public awareness through its innovative new marketing efforts. With purple being the internationally recognized color for epilepsy awareness, there are a proliferation of charitable causes that have adopted it and the generic awareness ribbon. In order to differentiate epilepsy from other causes, Epilepsy Association of Central Florida has designed a proprietary new epilepsy-specific purple ribbon in the shape of a bold and contemporary “e” to help build epilepsy awareness. “Even with epilepsy being so common, it isn’t talked about as much as it should be due to the many myths and stigmas that continue to surround the disorder,” said Chuck Carmen, Executive Director of Epilepsy Association of Central Florida. “We want to change that by providing more information about what epilepsy is and is not, which in turn, will help increase awareness about the condition.” The new purple “e” ribbon was formally introduced to the public as part of the nonprofit organization’s recent launch of The EpilepsyStore.com, the first online retail marketplace where people can “Shop Purple for a Purpose™.” The “e” store, as many refer to it, features affordable, custom-designed items with the purple “e” ribbon, including fashionable jewelry, tumblers, a necktie, hats, a license plate frame, car magnets, and even a limited edition set of purple and white “e” Christmas ornaments. 100% of the proceeds from the sale of these items benefit the programs of Epilepsy Association of Central Florida, so customers can purchase with confidence knowing they are helping others in need. “EpilepsyStore.com serves two important missions which include building epilepsy awareness and helping raise funds to put an end to seizures,” said Mr. Carmen. “Our goal is to differentiate epilepsy as a cause that is worthy of widespread public support, and to give it a recognizable brand identity that will gain the attention of millions with epilepsy, and even millions...

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Epilepsy Awareness: It’s “Christmas in July” at the EpilepsyStore.com

Epilepsy Awareness: It’s “Christmas in July” at the EpilepsyStore.com

EpilepsyStore.com is celebrating “Christmas in July” with a limited-edition set of purple and white holiday ornaments designed with the brand’s signature “e” ribbon to raise epilepsy awareness. Proceeds from the sale of these ornaments will help improve the quality of life for those 3.5 million Americans living with epilepsy. EpilepsyStore.com is helping to build epilepsy awareness through its exclusive, limited-edition set of purple and white Christmas ornaments with the brand’s signature “e” ribbon. This one-of-kind Christmas ornament has been designed so families affected by epilepsy can share the message of epilepsy awareness during the holidays with their family and friends. Orlando, Florida (PRWEB) July 20, 2015 [EpilepsyStore.com, the new nonprofit online retail marketplace where people can “Shop Purple for a Purpose™”, is celebrating “Christmas in July” to raise epilepsy awareness and generate funds to improve the quality of life for those 3.5 million Americans living with epilepsy. To commemorate this event, an exclusive, limited-edition set of purple and white Christmas ornamentswith the brand’s signature “e” epilepsy awareness ribbon have been designed especially for the EpilepsyStore.com. The trademarked purple “e” ribbon was created to distinguish epilepsy from over 25 causes that are using a generic purple awareness ribbon. With 100% of the proceeds from the sale of these holiday ornaments benefiting the programs of [Epilepsy Association of Central Florida, customers can purchase with confidence knowing they are helping others in need. Funds generated from this venture will help to support specific cause-related activities such as epilepsy prevention and education presentations, individual and family case management, support groups, and epilepsy-related medical services such as laboratory testing, neurologist visits, and diagnostics such as EEG’s and MRI’s to non-insured, underinsured, and those with pressing economic needs. “This one-of-kind Christmas ornament has been specially designed so families affected by epilepsy can share the message of epilepsy awareness in a subtle way, and, hopefully start a conversation about epilepsy during the holidays with their friends and loved ones,” said Charles Carmen, Executive Director of Epilepsy Association of Central Florida and founder of the EpilepsyStore.com. “There are still too many myths and stigmas surrounding this disorder that we must dispel.” EpilepsyStore.com is launching its “Christmas in July” event with a specially priced introductory offer of $14.95 for the set of two ornaments, which includes one each in purple and white. The hope is that these festive epilepsy awareness items will be both appealing and accessible to...

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Epilepsy Association Launches EpilepsyStore.com!

Epilepsy Association Launches EpilepsyStore.com!

Nearly 3 million people in the United States live with epilepsy and 1 in 26 people will develop epilepsy in their lifetime. To raise awareness and funds for epilepsy to provide assistance to those in need, Epilepsy Association of Central Florida has launched EpilepsyStore.com as the first online retail marketplace to “Shop Purple for a Purpose™” and bring epilepsy out of the darkness. Epilepsy Association of Central Florida has launched its new EpilepsyStore.com with a brand that brings its proprietary purple “e” ribbon to life with the slogan, “Shop Purple for A Purpose.” We wanted to bring more awareness to epilepsy, make it stand out, and take advantage of the growing internet shopping market by creating a unique online store to generate a source of income to help sustain our nonprofit mission. Orlando, Florida (PRWEB) July 08, 2015 Purple is the international recognized color for epilepsy awareness, but over 25 other charitable causes use it and the generic awareness ribbon. In order to differentiate epilepsy from other causes, a new epilepsy-specific purple ribbon in the shape of a bold and contemporary “e” has been designed to brand and launch The EpilepsyStore.com, the first online retail marketplace where people can “Shop Purple for a Purpose™”. The EpilepsyStore.com is a new social enterprise created by the Epilepsy Association of Central Florida, an Orlando, Florida-based nonprofit organization, as an entrepreneurial way to generate revenue to support and expand epilepsy awareness, help fund programs, and provide services to those in need. The EpilepsyStore.com provides the only online shopping experience of its kind that brings together epilepsy awareness items such as uniquely-designed jewelry and clothing, as well as epilepsy assistive devices and educational items. According to Chuck Carmen, Executive Director of the Epilepsy Association of Central Florida, “We wanted to bring more awareness to epilepsy, make it stand out, and take advantage of the growing internet shopping market by creating a unique online store to generate a source of income to help sustain our nonprofit mission.” Mr. Carmen continued, “With the popularity of social media today, more people affected by epilepsy are coming out of the shadows to break the stigma of epilepsy and join in the effort to build awareness, education and research for epilepsy.” The idea for The EpilepsyStore.com came from The Epilepsy Association of Central Florida’s desire to leverage its successful online epilepsy support community, EpilepsyU.com, which reaches nearly 1,000,000 people...

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