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Epilepsy Awareness: About the Purple “e” Ribbon

Posted by on Aug 14, 2015 in EACF news, Epilepsy Awareness, EpilepsyU, Featured | Comments Off on Epilepsy Awareness: About the Purple “e” Ribbon

Epilepsy Awareness: About the Purple “e” Ribbon

Epilepsy Awareness: Charity Designs Bold Purple “e” Ribbon to Stand Out From the Crowd 1 in 4 people will have a seizure during their lifetime, and 1 in 26 people will develop epilepsy. Today, 3.5 million people in the United States have epilepsy, making it the 4th most common neurological condition. Yet, despite its high incidence in the U.S., epilepsy receives a small percentage of research funding, and little attention, compared to other medical disorders. One charity, the Epilepsy Association of Central Florida, is intent on bringing epilepsy out of the darkness by building widespread public awareness through its innovative new marketing efforts. With purple being the internationally recognized color for epilepsy awareness, there are a proliferation of charitable causes that have adopted it and the generic awareness ribbon. In order to differentiate epilepsy from other causes, Epilepsy Association of Central Florida has designed a proprietary new epilepsy-specific purple ribbon in the shape of a bold and contemporary “e” to help build epilepsy awareness. “Even with epilepsy being so common, it isn’t talked about as much as it should be due to the many myths and stigmas that continue to surround the disorder,” said Chuck Carmen, Executive Director of Epilepsy Association of Central Florida. “We want to change that by providing more information about what epilepsy is and is not, which in turn, will help increase awareness about the condition.” The new purple “e” ribbon was formally introduced to the public as part of the nonprofit organization’s recent launch of The EpilepsyStore.com, the first online retail marketplace where people can “Shop Purple for a Purpose™.” The “e” store, as many refer to it, features affordable, custom-designed items with the purple “e” ribbon, including fashionable jewelry, tumblers, a necktie, hats, a license plate frame, car magnets, and even a limited edition set of purple and white “e” Christmas ornaments. 100% of the proceeds from the sale of these items benefit the programs of Epilepsy Association of Central Florida, so customers can purchase with confidence knowing they are helping others in need. “EpilepsyStore.com serves two important missions which include building epilepsy awareness and helping raise funds to put an end to seizures,” said Mr. Carmen. “Our goal is to differentiate epilepsy as a cause that is worthy of widespread public support, and to give it a recognizable brand identity that will gain the attention of millions with epilepsy, and even millions more who love and care for them, to share the new ‘e’ ribbon and help educate others about the condition. It is, indeed, time to bring epilepsy out of the darkness, and give it the long overdue attention it deserves.” About The Epilepsy Association of Central Florida The Epilepsy Association of Central Florida, Inc. is a 52 year-old, IRS-approved 501(c)3 non-profit that provides case management, medical services, support services, and epilepsy education. Its mission is to improve the quality of life for persons affected by epilepsy and seizure disorders. For further information, call 1-866-864-1416 or email...

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Epilepsy Awareness: It’s “Christmas in July” at the EpilepsyStore.com

Posted by on Jul 21, 2015 in EACF news, epilepsy news, EpilepsyU, Featured, News | Comments Off on Epilepsy Awareness: It’s “Christmas in July” at the EpilepsyStore.com

Epilepsy Awareness: It’s “Christmas in July” at the EpilepsyStore.com

EpilepsyStore.com is celebrating “Christmas in July” with a limited-edition set of purple and white holiday ornaments designed with the brand’s signature “e” ribbon to raise epilepsy awareness. Proceeds from the sale of these ornaments will help improve the quality of life for those 3.5 million Americans living with epilepsy. EpilepsyStore.com is helping to build epilepsy awareness through its exclusive, limited-edition set of purple and white Christmas ornaments with the brand’s signature “e” ribbon. This one-of-kind Christmas ornament has been designed so families affected by epilepsy can share the message of epilepsy awareness during the holidays with their family and friends. Orlando, Florida (PRWEB) July 20, 2015 [EpilepsyStore.com, the new nonprofit online retail marketplace where people can “Shop Purple for a Purpose™”, is celebrating “Christmas in July” to raise epilepsy awareness and generate funds to improve the quality of life for those 3.5 million Americans living with epilepsy. To commemorate this event, an exclusive, limited-edition set of purple and white Christmas ornamentswith the brand’s signature “e” epilepsy awareness ribbon have been designed especially for the EpilepsyStore.com. The trademarked purple “e” ribbon was created to distinguish epilepsy from over 25 causes that are using a generic purple awareness ribbon. With 100% of the proceeds from the sale of these holiday ornaments benefiting the programs of [Epilepsy Association of Central Florida, customers can purchase with confidence knowing they are helping others in need. Funds generated from this venture will help to support specific cause-related activities such as epilepsy prevention and education presentations, individual and family case management, support groups, and epilepsy-related medical services such as laboratory testing, neurologist visits, and diagnostics such as EEG’s and MRI’s to non-insured, underinsured, and those with pressing economic needs. “This one-of-kind Christmas ornament has been specially designed so families affected by epilepsy can share the message of epilepsy awareness in a subtle way, and, hopefully start a conversation about epilepsy during the holidays with their friends and loved ones,” said Charles Carmen, Executive Director of Epilepsy Association of Central Florida and founder of the EpilepsyStore.com. “There are still too many myths and stigmas surrounding this disorder that we must dispel.” EpilepsyStore.com is launching its “Christmas in July” event with a specially priced introductory offer of $14.95 for the set of two ornaments, which includes one each in purple and white. The hope is that these festive epilepsy awareness items will be both appealing and accessible to a broad segment of consumers. To celebrate “Christmas In July”, help raise epilepsy awareness, and help those in need, visit EpilepsyStore.com. About The Epilepsy Association of Central Florida The Epilepsy Association of Central Florida, Inc. is a 52 year-old, IRS-approved 501(c)3 non-profit that provides case management, medical services, support services, and epilepsy education. Its mission is to improve the quality of life for persons affected by epilepsy and seizure disorders. For further information, call 1-866-864-1416 or email...

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Epilepsy Association Launches EpilepsyStore.com!

Posted by on Jul 8, 2015 in EACF news, Epilepsy Awareness, epilepsy news, Featured | 1 comment

Epilepsy Association Launches EpilepsyStore.com!

Nearly 3 million people in the United States live with epilepsy and 1 in 26 people will develop epilepsy in their lifetime. To raise awareness and funds for epilepsy to provide assistance to those in need, Epilepsy Association of Central Florida has launched EpilepsyStore.com as the first online retail marketplace to “Shop Purple for a Purpose™” and bring epilepsy out of the darkness. Epilepsy Association of Central Florida has launched its new EpilepsyStore.com with a brand that brings its proprietary purple “e” ribbon to life with the slogan, “Shop Purple for A Purpose.” We wanted to bring more awareness to epilepsy, make it stand out, and take advantage of the growing internet shopping market by creating a unique online store to generate a source of income to help sustain our nonprofit mission. Orlando, Florida (PRWEB) July 08, 2015 Purple is the international recognized color for epilepsy awareness, but over 25 other charitable causes use it and the generic awareness ribbon. In order to differentiate epilepsy from other causes, a new epilepsy-specific purple ribbon in the shape of a bold and contemporary “e” has been designed to brand and launch The EpilepsyStore.com, the first online retail marketplace where people can “Shop Purple for a Purpose™”. The EpilepsyStore.com is a new social enterprise created by the Epilepsy Association of Central Florida, an Orlando, Florida-based nonprofit organization, as an entrepreneurial way to generate revenue to support and expand epilepsy awareness, help fund programs, and provide services to those in need. The EpilepsyStore.com provides the only online shopping experience of its kind that brings together epilepsy awareness items such as uniquely-designed jewelry and clothing, as well as epilepsy assistive devices and educational items. According to Chuck Carmen, Executive Director of the Epilepsy Association of Central Florida, “We wanted to bring more awareness to epilepsy, make it stand out, and take advantage of the growing internet shopping market by creating a unique online store to generate a source of income to help sustain our nonprofit mission.” Mr. Carmen continued, “With the popularity of social media today, more people affected by epilepsy are coming out of the shadows to break the stigma of epilepsy and join in the effort to build awareness, education and research for epilepsy.” The idea for The EpilepsyStore.com came from The Epilepsy Association of Central Florida’s desire to leverage its successful online epilepsy support community, EpilepsyU.com, which reaches nearly 1,000,000 people worldwide every month with valuable news, information, education, and support. By launching The EpilepsyStore.com, the organization can continue to expand its geographic reach and mission by offering another way to help educate the nation and the world about epilepsy. Since the recent launch of The EpilepsyStore.com, customer traffic and online orders have already exceeded early projections. The proprietary purple “e” ribbon has found its way on to uniquely-designed license plate frames, car magnets, jewelry, and clothing items. Plus, this month, The EpilepsyStore.com will launch its “Christmas in July” event featuring a new holiday ornament designed and manufactured exclusively for the online marketplace. ABOUT THE EPILEPSY ASSOCIATION OF CENTRAL FLORIDA The Epilepsy Association of Central Florida, Inc. is a 52 year-old, IRS-approved 501(c)3 non-profit that provides case management, medical services, support services, and epilepsy education. Its mission is to improve the quality of life for persons affected by epilepsy and seizure...

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The Patterson Foundation Features EpilepsyStore.com

Posted by on Jun 4, 2015 in Achievements, Childhood Epilepsy, EACF news, Education, epilepsy news, Featured, Fundraiser | Comments Off on The Patterson Foundation Features EpilepsyStore.com

The Patterson Foundation recently featured a blog post written by Chuck Carmen about our new “earned income venture”, EpilepsyStore.com. Thanks to No Margin, No Mission, the Epilepsy Association of Central Florida has launched a new, dedicated eCommerce site for epilepsy awareness, educational and assistive products.

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2014 Brevard Walk Video

Posted by on Jan 23, 2015 in EACF news, Events, Featured, Fundraiser | Comments Off on 2014 Brevard Walk Video

THANK YOU to SpaceCoastDaily for capturing and posting this video of the 2014 Brevard County Epilepsy Walk!

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Thank you Freedom Athletics!

Posted by on Jan 16, 2015 in Achievements, Childhood Epilepsy, Dispelling Myths, EACF news, Epilepsy Awareness, Featured, Fundraiser, Fundraisers, Parents | 1 comment

Freedom Athletics Raises Awareness and Money for Epilepsy! The Epilepsy Association of Central Florida wants to thank Freedom Athletics and their young athletes for supporting us and raising awareness for Epilepsy! Freedom Athletics’ owner, Mrs. Nancy McDowell is friends with a former client of the Epilepsy Association that has epilepsy, and also one of the athletes, 7 year old Holly Hunter also deals with epilepsy. 3 of Freedom Athletics’ cheerleaders wanted to make a difference in the lives of persons with epilepsy, so they visited elderly patients in a residential facility to offer “Beauty Treatments” and raised awareness of epilepsy and $100 for the Epilepsy Association of Central Florida. Their wish is to see a cure for epilepsy! Featured in pics: Alanna McDowell, 10 (Center in pictures, tallest), Holly Hunter, 7 (Middle),  Sierra Manning, 11, and on the  right is Jordan Harris, 11, Jackie Heyliger, our Brevard County office and case manager is also featured in one of the images accepting the donation check from the girls. Photos courtesy of Hanna Norris, age 9....

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BLOG: More than a Fundraiser, Walk and Run for Epilepsy (prevention)!!!

Posted by on Jul 16, 2014 in EACF news, Fundraiser, Fundraisers | Comments Off on BLOG: More than a Fundraiser, Walk and Run for Epilepsy (prevention)!!!

BLOG: More than a Fundraiser, Walk and Run for Epilepsy (prevention)!!!

  by @admin of EpilepsyU.com In 2013, we broke the story about how vigorous exercise can greatly reduce the risk for epilepsy. That week, similar stories covering this finding are plastering the front page of Google News for “Epilepsy”. It is a big deal. Results showed that men who had a high level of fitness were 80% less likely to develop epilepsy compared with men who had low fitness levels, and 35% less likely than those who had medium fitness levels. As a cyclist myself, it is awesome that the research used Cycling as the test, I even used a shot that I took of a pro mountain biker for the story’s cover photo. It makes me proud that cycling is so beneficial to the mind and body. The fitness-level assessments for this research were run on bicycles – “In the study, participants’ fitness levels were ranked on a scale of 1 to 9, based on how well they did on cycling tests. The men rode stationary bicycles with increasing resistance until they couldn’t cycle anymore. The men who had the lowest scores were still healthy enough to have been enlisted in the military, Ben-Menachem noted. Among men classified as having high fitness, about 2,380 out of about 500,000 developed epilepsy later (0.48 percent). Among men with medium fitness, about 4,000 out of 630,000, or 0.62 percent, developed epilepsy. The number of men with low fitness who developed epilepsy was 502 out of about 46,000 men, or 1.09 percent.” via Fox News – http://www.foxnews.com/health/2013/09/06/exercise-may-ward-off-epilepsy/ The research was a long process, following 1.17 million swedish men born between 1950 and 1987 who had completed cardiovascular fitness tests when they enlisted for military service at the age of 18. The participants were followed for up to 40 years, during which 6,796 men were diagnosed with epilepsy. This research also spurs other questions, like, “Is a low fitness level actually a trigger for Epilepsy onset?” or “does having a low level of fitness actually warrant a medical inquiry to find undetected symptoms?” More research is clearly needed to answer those questions, but one thing is certain, having a medium to high level of fitness puts you in a group of people with a lower chance for developing epilepsy and also, of course, many other cardiovascular, respiratory, neurological degenerations, diseases and disorders. What is great about this research and findings is that it ties right into one of the most common forms of Fundraisers (or as we like to call them, “Fun-Raisers”) for many afflictions, including Epilepsy. “The Walk”. The Epilepsy Association of Central Florida holds two walks a year, one in each of the two main areas that we cover; a spring walk in landlocked-Central Florida (Orange and Seminole Counties) and fall walk in coastal Brevard County Florida. Walking and running are great for health and well-being. This is not new information, but to learn that a fitness schedule that includes vigorous walking or running could actually prevent epilepsy is such a great tie in to our Epilepsy “Fun”-Raisers! If you haven’t registered yet for our 2015 Brevard County Epilepsy Walk, you certainly should! This year we are holding it Saturday, October 18, 2014 at 9:00 AM at Wickham Park Amphitheater in Melbourne, FL! It will be a ton of fun. Come join us as we raise money...

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EACF: Annual Client Satisfaction Survey Results

Posted by on May 27, 2014 in EACF news, Family and Friends, Social Media, Survey | 2 comments

EACF: Annual Client Satisfaction Survey Results

Our Annual Client Satisfaction Survey Results Are In July 2013 – May 2014  The Epilepsy Association of Central Florida is proud of the work we do and proud to share it with you. This survey is of the clients we serve in our Epilepsy Services Program Case Management Program.  210 completed surveys were returned to us out of 670 unique individuals surveyed for a response rate of 31%.  We thank those that took the time to respond.  RESULTS: Question:  Overall I am satisfied with the care and service I receive from the Epilepsy Association of Central Florida = 98% Question:  I have better seizure control = 92% Question: I know more about my seizures = 94% Question:  I feel better now discussing my seizure disorder = 92% Question: The Epilepsy Association Staff treated me with courtesy = 97% Question: I am more independent in taking care of my needs now = 92% Question:  I am getting good medical care from my neurologist = 94% Question: My overall quality of life has improved = 84% Question:  I feel better about myself = 88% The average number of times in the previous year a person called 911 or went to the hospital emergency room prior to coming to the Epilepsy Association was 4.4. After being in the program this year it was down to .35 or a 92%...

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Support the EACF by Shopping Amazon Smile!

Posted by on Apr 10, 2014 in EACF news, Epilepsy Awareness | Comments Off on Support the EACF by Shopping Amazon Smile!

Support the EACF by Shopping Amazon Smile!

Now when you shop at Amazon Smile (Same selection and prices as Amazon.com) you will be supporting the Epilepsy Association of Central Florida! Click the link above to start shopping and a percentage of any purchase will be donated to the EACF!         Epilepsy Association of Central Florida,...

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Epilepsy Association Receives Top Rating, 2013 Great NonProfits

Posted by on Dec 6, 2013 in EACF news, Epilepsy Awareness, EpilepsyU, Family and Friends, Featured | Comments Off on Epilepsy Association Receives Top Rating, 2013 Great NonProfits

Epilepsy Association Receives Top Rating, 2013 Great NonProfits

EPILEPSY ASSOCIATION OF CENTRAL FLORIDA INC has qualified for a 2013 Top-Rated Nonprofit award from Greatnonprofits. This is a great honor, given less than 10% of eligible nonprofits have received this...

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