CHARLES “CHUCK” CARMEN
Chuck has been the Executive Director since 1994. Selected by Southeast Association Magazine as one of the four most influential Executives in the Southeastern United States he has served as a Board Member of the Florida Society of Association Executives as well as the former Epilepsy Foundation of Florida and the Florida Epilepsy Services Providers Association.
Chuck is only the second Executive Director in EACF’s long history and is the longest serving Epilepsy Executive Director in Florida. In addition to managing the day-to-day operations of The Epilepsy Association his experience and knowledge has certified him as an “expert witness” where he has testified in numerous high profile cases. Personally he has conducted hundreds of presentations, seminars, and training programs on all aspects of epilepsy as well as becoming one of the nation’s leaders in the education and prevention of Shaken Baby Impact Syndrome.
He is also the Founder of EpilepsyU.com an online epilepsy news, education and support site reaching over 3 million people every month in over 150 nations. He also founded EACF’s social enterprise Epilepsystore.com an online epilepsy awareness product store where 100% of the proceeds support the programs of Association.
Prior to coming to Associatin, as a former business owner and community leader, Chuck has served Central Florida as an active volunteer in many capacities including: appointed Member of the Whitehouse Commission for the Disabled (ADA), appointed Chair of WayFarer (the former transportation disadvantaged board prior to Lynx), appointed Chair of the Central Florida Manpower Planning Council for the employment of the disadvantaged, appointed Board Member of the Orlando International Airport Design Committee representing the “handicapped”, just to mention a few.
COMMUNITY ADVOCATE/COMMUNITY DEVELOPMENT
Ceil joined the staff of The Epilepsy Association in April of 2010. In her role as the assistant to the Executive Director she provides administrative support and acts as a liaison between the Executive Director and program services. Ceil also serves as a client advocate. She participates in events that provide education and information about Epilepsy and seizure disorders.
Her background in event planning and public relations has been a perfect fit as coordinator of the annual “AutoClassic” Golf Tournament and Auction presented each year by the Central Florida Auto Dealers Association benefiting The Epilepsy Association and, the first annual “Purple Picnic” hosted by EACF in celebration of the 50 year anniversary and the founders 90th Birthday.
Prior to joining the Association, Ceil worked at McNamara Pontiac, Inc. for nearly 25 years, serving as the Executive Assistant to the President & Owner. She organized community functions for the dealership, coordinated the General Motors Standards for Excellence customer service and the Child Safety Seat initiative programs, employee relations, benefits and activities. She interacted with top executives, government officials, community leaders and corporate CEOs.
Her affiliations are with Children’s Safety Coalition of Orange County, Lake Villas Condominium Association, Sea Oats Condominium Association, Orlando Police Department, Orange County Sheriff’s Department, National Wild Turkey Federation, West Orange Chamber of Commerce, Orlo Vista Chamber of Commerce and the Orlo Vista United Safe Neighborhood, and Go Gators!
DIRECTOR OF PREVENTION AND EDUCATION
Bev Kennedy has been with Association since 1996. She has coordinated all activities from the implementation to completion of EACF’s annual golf tournament/auction and developed Epilepsy Awareness Walks. She has conducted thousands of presentations, seminars and “train the trainer” sessions on epilepsy and shaken baby impact syndrome (SBIS) as well as advocating for persons with epilepsy. She is skilled and knowledgeable having presented at several state conferences, such as Florida School Health Association Conference and Special Olympic Conference.
She was instrumental in developing a national educational program on SBIS that has delivered nearly 15,000 educational videos and teaching curriculums to health educators, nurses, teachers and many more throughout the United States and internationally. She initiated a program distributing thousands of SBIS brochures to area hospitals to be placed in each new Mom’s take home packet to educate them on the dangers of SBIS. She has distributed thousands of bicycle helmets throughout four counties (Orange, Osceola, Seminole and Brevard) and provided numerous trainings on how to fit a helmet. She was recognized by the Seminole County School Board as one of three top school educational presenters.
LEAD CASE MANAGER
Pachi Mangione began working at The Epilepsy Association in 1997. She graduated from Barry University, with a BPA and also hold a degree in Mental Health Degree (AAS) from Texas. She completed her Certification in Case Management here in Florida.
Her background includes but is not limited to Case management, Residential Care, Mental Health, and Epilepsy to name a few. As a case manager, she has worked extensively with the public, providing information, referrals, support (1:1 and support groups) and education to client their family and friends.
As a bilingual translator, she has been able to assist both our clients and their family when a language barrier exists. Volunteering in many of Association’s events throughout the years, Pachi has focused on networking and promoting the programs and work of the Association. Through her networking, she has organized several critical donations to the Association.
Jackie manages the Brevard region for The Epilepsy Association. She has been with the Association since 2004. Not only does she take excellant care of the clients in Brevard County she manages the Brevard County office as well. Prior to working for Association, Jackie worked in the field of parent education and child abuse prevention.
ORLANDO CASE MANAGER
Mike joined us in 2017 as an Orlando Case Manager. Mike brings to us a distinctive combination of career background that produced positive contributions wherever he was. Mike is also a personal trainer and group exercise instructor.
Before coming to Orlando and changing careers Mike traveled the world as a Cruise Director entertaining people from countries worldwide, creating a smile, laughter and memories that will last a life time. His experience and understanding of our clients’ needs make him a well-liked and personable Case Manager.